In 2018, The Beryl Institute established the Academic Consortium on Patient Experience for the purpose of understanding and furthering the engagement of Patient Experience (PX) as a topic in healthcare academia. The first thing the Consortium determined to be critical was a clear identification of what was actually being taught, in what programs and in what ways. That led to the inquiry we invite you to participate in today.
The survey is designed to collect baseline information about what is happening today in terms of engaging the PX conversation in education, what is being taught, where it is being taught, and how it is being taught. These data will help frame the work of the Consortium and establish a shared understanding to help all address this topic in their programs.
We will be sharing the full results in a summary report to all participants in the study and then through a larger paper later this year as we assess the patient experience education landscape. We ask you take a few minutes to respond by February 15, 2019. We also ask that and encourage you to please forward this inquiry on to colleagues you know who may also be able to contribute to this study.
You can start the survey here:
https://www.surveymonkey.com/r/PXEdInquiry
Thank you sharing your thoughts in advance.
The Academic Consortium Steering Team
Jason A. Wolf, President, The Beryl Institute / Founding Editor, Patient Experience Journal
Leonard Friedman, Director of the Executive Master of Health Services Administration (MHA@GW) Program, George Washington University
Deanna Frings, Vice President, Learning & Professional Development, The Beryl Institute
Francis Fullam, Assistant Professor, Health Systems Management, Rush University
Denise Kennedy, Clinical Assistant Professor, College of Health Solutions, Arizona State University
Christy Harris Lemak, Chair, Department of Health Services Administration, University of Alabama at Birmingham
Bill Lobst, MD, Vice President for Academic & Clinical Affairs and Vice Dean for Medical Education
Steve Scheinman, MD, President and Dean, Geisinger Commonwealth School of Medicine
Victoria Niederhauser, Dean & Professor, College of Nursing, The University of Tennessee, Knoxville
Geoff Silvera, Assistant Professor, Auburn University / Associate Editor, Patient Experience Journal
Anthony Stanowski, President and CEO, CAHME
Jason
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Jason A. Wolf, Ph.D., CPXP
President | The Beryl Institute
Founding Editor | Patient Experience Journal
202.650.7491| www.theberylinstitute.org
Twitter: @jasonawolf | @berylinstitute | @pxjournal
Patient Experience: The sum of all interactions, shaped by an organization's culture, that influence patient perceptions across the continuum of care. - The Beryl Institute
There is 1 message totaling 547 lines in this issue.
1. Invitation to submit a Chapter to the book 'Communicating Rare Diseases
and Disorders in the Digital Age'
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Date: Mon, 28 Jan 2019 22:28:41 +0000
Subject: Invitation to submit a Chapter to the book 'Communicating Rare Diseases and Disorders in the Digital Age'
I hope this e-mail finds you well! Currently, I am in the process of editing a forthcoming publication entitled Communicating Rare Diseases and Disorders in the Digital Age, to be published by IGI Global, an international publisher of progressive academic research. I would like to take this opportunity to cordially invite you to submit your work for consideration in this publication.
I am certain that your contribution on this topic and/or other related research areas would make an excellent addition to this publication.
Communicating Rare Diseases and Disorders in the Digital Age
Call for Chapters: Communicating Rare Diseases and Disorders in the Digital Age
DigiMedia Research Centre, University of Aveiro, Portugal
CICECO, University of Aveiro, Portugal
Proposals Submission Deadline: February 9, 2019
Full Chapters Due: March 16, 2019
Submission Date: May 30, 2019
A primary concern of rare diseases diagnosis is the lack of accurate information that, consequently, may lead to its delays, inaccurate treatments or rehabilitation interventions and social consequences. Although attention has been drawn to rare diseases with the Orphan Drug Act of 1983 in order to encourage pharmacology to develop new drugs, there is still lack of patients' tracking and information about the diseases' causes and incidence. Health communication continues to be one-way and rely heavily on the expertise from the health professional/practitioner and in such a broad spectrum of rare diseases, patients may find it hard to obtain timely information, accurate diagnosis, appropriate treatments and surgeries, medication or/and psychological counseling in their own countries. The use of Information and Communication Technologies open up avenues for future research on health communication, pathophysiology, innovative provider-patient mediated interactions, rare diseases initiatives, media and health campaigns, biostatistics and health monitoring.
The aim of this book is to provide theoretical and empirical research about the use of computer-mediated communication in rare diseases and disorders. It differs from other published books as it is trans disciplinary, bringing to the fore current advances in health communication, computer science and epidemiology. In addition, the book covers the following trends and important issues in health-related communication and disease management: the use of social media and awareness to rare diseases, blockchain in rare disease data and its record management, computer-assisted aided diagnosis, ethics, media coverage, biostatistics and health monitoring.
The target audience of this book will be students, researchers, and practitioners with interests in health communication, rare diseases, technology-enabled health, epidemiology, information visualization, biostatistics and computer-mediated communication and marketing. As the book addresses health computer-mediated communication aspects and disease management, it will be beneficial to such stakeholders as physicians, patients, researchers, health professionals and practitioners, caregivers and decision-makers.
* Social media and awareness to rare diseases
• Blockchain in Rare Diseases Data
• Managing eHealth open data and Rare Diseases Records
• Online communities, Sociometry and Rare diseases support
• Cases of Rare Diseases Communication Using Digital Technologies
• Computer-assisted aided diagnosis of rare diseases
• Digital technology and epidemiology of rare diseases
• Ethics in the use of ICT in rare diseases
• Communication and legislation in rare diseases and orphan medicines
• Sociotechnology and rare diseases
• Media coverage about different types of rare diseases
• Communication of rare diseases throughout time
• Health computer-mediated communities and rare diseases
• Media campaigns and the drug-oriented market in rare diseases
• Statistics and data about the prevalence of rare diseases
• Patient experiences and stories shared in the media
• Health monitoring and disease management through digital devices
Researchers and practitioners are invited to submit on or before February 9, 2019, a chapter proposal of 1,000 to 2,000 words clearly explaining the mission and concerns of his or her proposed chapter. Authors will be notified by February 14, 2019 about the status of their proposals and sent chapter guidelines. Full chapters are expected to be submitted by March 16, 2019, and all interested authors must consult the guidelines for manuscript submissions at http://www.igi-global.com/publish/contributor-resources/before-you-write/ prior to submission. All submitted chapters will be reviewed on a double-blind review basis. Contributors may also be requested to serve as reviewers for this project.
Note: There are no submission or acceptance fees for manuscripts submitted to this book publication, Trust in Knowledge Management and Systems in Organizations. All manuscripts are accepted based on a double-blind peer review editorial process.
All proposals should be submitted through the eEditorial Discovery®TM online submission manager.
This book is scheduled to be published by IGI Global (formerly Idea Group Inc.), publisher of the "Information Science Reference" (formerly Idea Group Reference), "Medical Information Science Reference," "Business Science Reference," and "Engineering Science Reference" imprints. For additional information regarding the publisher, please visit www.igi-global.com. This publication is anticipated to be released in 2020.
February 9, 2019: Proposal Submission Deadline
February 14, 2019: Notification of Acceptance
March 16, 2019: Full Chapter Submission
April 15, 2019: Review Results Returned
May 15, 2019: Final Acceptance Notification
May 30, 2015: Final Chapter Submission
DigiMedia, University of Aveiro, Portugal
CICECO, University of Aveiro, Portugal
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End of HEALTHMGMT Digest - 24 Jan 2019 to 28 Jan 2019 (#2019-10)
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